A Feasibility Study of a Community-Based Program for Individuals Living With Dementia.

Background.

Engagement in meaningful social and everyday activities is crucial for maintaining overall well-being and quality of life. However, individuals diagnosed with dementia are more likely to experience a decline in participation, which can lead to social isolation and loneliness. This highlights the need for programs that help individuals to adapt to the changes following a dementia diagnosis. Journeying through Dementia (JtD) is one such program, designed to encourage continued meaningful participation.

Purpose.

This study aimed to explore the feasibility of implementing the JtD program in Quebec and to collect preliminary data to inform future trials. Five feasibility criteria were assessed: (a) acceptability of the program; (b) appropriateness of content and delivery; (c) adherence and retention; (d) suitability of recruitment strategies; and (e) appropriateness of outcome measures.

Methods.

A single-site exploratory feasibility study was conducted, guided by the Medical Research Council (MRC) framework. The intervention consisted of eight 2-hour group sessions held at a research center. The MRC framework also guided data collection and analysis.

Finding.

Three participants completed the program. They reported several benefits and found both the content and delivery appropriate. Adherence and retention rates were high. Partners also expressed interest in participating in the study and contributed valuable insights. Feedback on recruitment and the use of outcome measures was provided for consideration in the next phases of the study.

Conclusion.

Findings support the feasibility and acceptability of the JtD program in the Québec context and highlight considerations for future evaluation.

Exploring a Dementia Program's Feasibility in Quebec: The Journeying Through Dementia Study

What is it about?

The study explored the feasibility of implementing the Journeying through Dementia (JtD) program in Quebec, focusing on its potential to support individuals diagnosed with dementia in maintaining social and everyday activities. It employed a single-site exploratory feasibility approach using the Medical Research Council (MRC) framework, involving eight 2-hour group sessions at a research center. Five feasibility criteria were assessed: program acceptability, content and delivery appropriateness, adherence and retention, recruitment strategy suitability, and outcome measure appropriateness. Three participants completed the program, reporting several benefits, including high adherence and retention rates. The study found the program content and delivery to be appropriate, with participants expressing satisfaction and positive benefits, such as improved self-awareness and supportive social connections. Feedback on recruitment and outcome measures was collected to inform future trials, supporting the program's feasibility and acceptability in the Quebec context.

Why is it important?

This study is important as it addresses the critical need for programs that support continued social and everyday participation among individuals diagnosed with dementia, a group at risk of social isolation and loneliness. The research explores the feasibility of implementing the Journeying through Dementia (JtD) program in Quebec, providing valuable preliminary data that can guide future trials and adaptations. By focusing on meaningful participation and self-awareness, the study offers a promising approach to improve the quality of life for people living with dementia. This is significant as it aims to fill gaps in existing services, offering tailored and flexible support within a fragmented service landscape, thus potentially transforming how care and support are provided post-diagnosis.

Key Takeaways:

1. Feasibility and Acceptability: The study confirms the feasibility and acceptability of the Journeying through Dementia program in Quebec, with participants reporting high levels of satisfaction and positive outcomes from their involvement.

2. Addressing Social Participation: Participants experienced increased self-awareness, confidence, and supportive relationships, highlighting the program's potential to enhance social participation and address loneliness among individuals with dementia.

3. Tailored Support and Service Gaps: The program successfully offers tailored and flexible support, addressing existing service gaps in dementia care and presenting a promising model for future implementation in a resource-limited and fragmented service landscape.