HORTON, Ellie, BROWNHILL, Laura, BYCROFT, Alice, GOLDSCHMIED, Anita Z, KNOPS, Max J., LLOYD, Anthony, TONES, Daniel, TORO, Carla T and JUTLEY-NEILSON, Jagjeet (2025). In our own words: Using participatory dialogue to reflect on the mental health experiences of autistic students in university. Neurodiversity, 3. [Article]
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10.1177_27546330241310372.pdf - Published Version
Available under License Creative Commons Attribution Non-commercial.
10.1177_27546330241310372.pdf - Published Version
Available under License Creative Commons Attribution Non-commercial.
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Abstract
The mental health of autistic university students is a key issue to address, evidenced by increased prevalence of mental health issues within the autistic community and growing numbers of autistic university students. Autistic students experiencing mental health issues have the lowest retention and progression rates of any disability group. This research took a novel approach, with seven co-authors and members of the participatory group (all current/recent students) identifying 10 themes reflecting their mental health experiences at university through reflective discussions, enabling autistic people to lead research and address power imbalances inherent in autism research. They presented these themes at a webinar, attended by over 200 staff from UK universities, providing a platform for autistic students to influence practice. Ten themes identified in line with experiences of the triggers and risk factors for mental health at university were; Routine, living independently, reasonable adjustments, group work, sensory issues, attendance and a range of learning options, disclosing diagnosis, social issues, burnout and seeing the bigger picture. We discussed the support that we found to be useful and developed recommendations for universities to support the positive well-being of autistic students. We outline the need for universities to co-produce services and support with autistic students.
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