Adolescent Perspectives on Negotiating Self-Management Responsibilities for Type 1 Diabetes with their Parents

TUOHY, Ella, GALLAGHER, Pamela, RAWDON, Caroline, MURPHY, Nuala, SWALLOW, Veronica and LAMBERT, Veronica (2023). Adolescent Perspectives on Negotiating Self-Management Responsibilities for Type 1 Diabetes with their Parents. Patient Education and Counseling, 109: 107629.

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Objective The overall purpose of this study was to explore adolescent perspectives on communicating about self-management of type 1 diabetes (T1D) and negotiating responsibilities for self-management with parents. Methods Semi-structured interviews were conducted with 28 adolescents aged 11 to 17 years living with T1D. Interviews were audio-recorded, transcribed verbatim and thematically analysed. Results Two themes and five subthemes were identified. The first theme, ‘changing levels of involvement in self-management’ describes the division of responsibility for self-management within the family and adolescents collaborating and sharing responsibilities with parents for self-management. The second theme, ‘talking about self-management with parents’ describes changes in patterns of parent-adolescent communication about T1D over time, adolescents’ seeking parental feedback and advice and the factors that contribute to the promotion of self-management communication between adolescents and parents. Conclusion This study identified that how adolescents perceive communication with their parents contributes to negotiation of responsibilities for self-management during adolescence. The findings provide a nuanced understanding of adolescent perspectives on communication with parents about T1D self-management and how parent-adolescent communication can be framed in ways that promote positive adolescent engagement with T1D self-management. Practice implications Targeting parent-adolescent communication strategies may result in more optimal sharing of responsibilities and improved self-management

Item Type: Article
Uncontrolled Keywords: 11 Medical and Health Sciences; 17 Psychology and Cognitive Sciences; Public Health
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SWORD Depositor: Symplectic Elements
Depositing User: Symplectic Elements
Date Deposited: 12 Jan 2023 12:49
Last Modified: 13 Jan 2024 01:18

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