Blogging with dementia: writing about the lived experience of dementia in the public domain

BROOKS, Jennifer and SAVITCH, Nada (2022). Blogging with dementia: writing about the lived experience of dementia in the public domain. Dementia: the international journal of social research and practice, 21 (8), 2402-2417.

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Public narratives around dementia have historically been negative, and have not been shaped by people with dementia themselves, but stories of living with dementia are becoming more common in the public domain. This qualitative study explored the motivations and experiences of bloggers by conducting interviews with six bloggers with dementia in the UK. Thematic analysis suggested that the asynchronous nature of blogging offered a valuable, personalised space for people with dementia to tell their own stories in their own way. Blogging as a format posed some practical challenges, but bloggers developed strategies to overcome these. Motivations for blogging were on three levels: the personal (as a journal, and as a ‘room of one’s own’); community (as solidarity for other people with dementia, and as comfort for families and friends); and society (as an educational and campaigning tool). While the study is small, and there are many voices of people with dementia missing from the blogging community, this research demonstrates the potential for blogging by people with dementia to change public narratives and perceptions of dementia.

Item Type: Article
Uncontrolled Keywords: Geriatrics; 1103 Clinical Sciences; 1110 Nursing; 1702 Cognitive Sciences
Identification Number:
Page Range: 2402-2417
SWORD Depositor: Symplectic Elements
Depositing User: Symplectic Elements
Date Deposited: 05 Jul 2022 11:42
Last Modified: 12 Oct 2023 09:31

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