BLOWER, Sarah, SWALLOW, Veronica, MATURANA, Camila, STONES, Simon, PHILLIPS, Bob, DIMITRI, Paul, MARSHMAN, Zoe, KNAPP, Peter, DEAN, Alex, HIGGINS, Steve, KELLAR, Ian, CURTIS, Penny, MILLS, Mathaniel and MARTIN-KERRY, Jackie (2020). Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review. Archives of Disease in Childhood. [Article]
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Abstract
Background: The use of patient-facing health technologies to manage long-term conditions is
increasing; however, children and young people may have particular concerns or needs before
deciding to use different health technologies.
Aims: To identify children and young people’s reported concerns or needs in relation to using
health technologies to self-manage long-term conditions.
Methods: A scoping review was conducted. We searched MEDLINE, PsycINFO and CINAHL in
February 2019. Searches were limited to papers published between January 2008 and February
2019. We included any health technology used to manage long-term conditions. A thematic
synthesis of the data from the included studies was undertaken. We engaged children with long
term conditions (and parents) to support review design, interpretation of findings and
development of recommendations.
Results: Thirty-eight journal articles were included, describing concerns or needs expressed by
n=970 children and/or young people aged 5-18 years. Most included studies were undertaken in
high income countries with children aged 11 years and older. Studies examined concerns with
mobile applications (n=14), internet (n=9), social media (n=3), interactive online treatment
programmes (n=3), telehealth (n=1), devices (n=3), or a combination (n=5). Children and young
3
people’s main concerns were labelling and identity; accessibility; privacy and reliability; and
trustworthiness of information.
Discussion: This review highlights important concerns that children and young people may have
before using technology to self-manage their long-term condition. In future, research should
involve children and young people throughout the development of technology, from identifying
their unmet needs through to design and evaluation of interventions
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