'Umbrella' review of family-focused care interventions supporting families where a family member has a long-term condition

SMITH, Joanna, ALI, Parveen, BIRKS, Yvonne, CURTIS, Penny, FAIRBROTHER, Hannah, KIRK, Susan, SALTIEL, David, THOMPSON, Jill and SWALLOW, Veronica (2020). 'Umbrella' review of family-focused care interventions supporting families where a family member has a long-term condition. Journal of Advanced Nursing.

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Link to published version:: https://doi.org/10.1111/jan.14367


Aim: To summarise reviews of family-focused care interventions that support families with a family member with a long-term condition across the life course. Design: Umbrella review. Data sources: Medline (1946- 2019), Cochrane Data Base of Systematic Reviews (2019), Database of Abstracts of Reviews of Effect and EMBASE (1947- 2019), CINAHL (1981-2019), Health Technology Assessment Database (2019) and PsycInfo (1806-2019). Review Methods: All authors independently undertook title/abstract screening, data extraction and quality appraisal on a cluster of papers, working in groups of two or three to reach a consensus. The AMSTAR tool was used to appraise the quality of the studies and descriptive syntheses were undertaken. Results: Fifteen reviews met the selection criteria. Overall family-focussed care and associated terms were poorly defined. Typically interventions were educational or psychological therapy/counselling with the goal of empowering individuals to manage their condition. There is some evidence that family-focused care interventions can improve clinical/biological health measures and self-care outcomes such as treatment adherence. Multi-component psychosocial interventions that include cognitive-behavioral therapy, skills training, education and support and are focused on wider family members appear to improve family relationships and martial functioning. Conclusion: Long-term conditions have an impact on individual and family health and well-being, yet the impact of family-focused care interventions on family outcomes was overall inconclusive. A better understanding of how family-focused care interventions improve the health and well-being of individuals and their families is needed to promote the inclusion of family-focused care into practice. Impact: Supporting people with a long-term condition is a key health and social care priority. Family-focused care interventions have potential to improve the health and well-being of individuals and families but there is a need to evaluate their clinical and cost effectiveness. The findings from this review could be used by funding bodies when commissioning research for long-term conditions.

Item Type: Article
Uncontrolled Keywords: Nursing; 1110 Nursing
Identification Number: https://doi.org/10.1111/jan.14367
SWORD Depositor: Symplectic Elements
Depositing User: Symplectic Elements
Date Deposited: 23 Mar 2020 14:24
Last Modified: 18 Mar 2021 01:17
URI: https://shura.shu.ac.uk/id/eprint/25994

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