A qualitative exploration of experiences of physiotherapy among people with fibromyalgia in the United Kingdom

Introduction: Fibromyalgia is a common condition characterized by widespread pain and debilitating symptoms. It is a complex, varied and unpredictable condition, which can frustrate and complicate the relationship between patient and practitioner. There is currently little evidence regarding fibromyalgia patients' perspectives on physiotherapy in the United Kingdom (UK). Objective: To investigate the experiences of physiotherapy from the perspective of people with fibromyalgia in the UK. Methods: A UK-based mixed-methods survey gathered broad-ranging data from 941 people in the UK with fibromyalgia, regarding living and working with, and being diagnosed and treated for the condition. Qualitative data regarding experiences of physiotherapy were extracted from the full survey dataset, which included responses from 205 participants. Results: Thematic analysis generated two themes, each with two subthemes. "Access to the Physiotherapist: 'The Long and the Short of It'" had subthemes of "The Long: Delayed diagnosis, referral and access" and "The Short: A few physiotherapy sessions are not enough". "The Experience of Physiotherapy: Care on whose terms?" included subthemes of "Physiotherapist as 'Expert'" and "Patient as Partner". Conclusion: Physiotherapy characterized by understanding and respect was experienced more positively than inflexible, 'expert' approaches. Findings suggest implications for emotional responses, communication skills and practitioner training.