BAKER-ROGERS, Joanna (2018). Autism, sociality and friendship: a qualitative enquiry. Doctoral, Sheffield Hallam University. [Thesis]
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Baker-Rogers_2018_EdD_AutismSocialityFriendship.pdf - Accepted Version
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Baker-Rogers_2018_EdD_AutismSocialityFriendship.pdf - Accepted Version
Available under License Creative Commons Attribution Non-commercial No Derivatives.
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Abstract
In my thesis, I report on my qualitative enquiry into the meaning of sociality and
friendship from the perspective of persons with autism. I sought to make a
contribution to knowledge by describing: 1) the meaning that persons with
autism attach to sociality and friendship; 2) the barriers that persons with autism
encountered in experiencing sociality and friendship; and 3) how persons with
autism see these barriers being overcome. Data was gathered from three
primary data sources: video blogs, online interviews, and autobiographical
accounts published in books. The narratives I reviewed had been posted or
written by persons with autism and were subjected to thematic analysis. The
enquiry methodology reflected my commitment to emancipatory disability
research and my theoretical position of possibilities for an enabling narrative of
sociality and friendship for persons with autism.
My analysis of the data evidenced that my sources desired to socialise, make
friends, and maintain friendships. Despite their successes in making friends and
maintaining friendships, the sources distrusted their sociality that I labelled
autistic sociality. The sources regarded predominant neurotype (PNT) sociality
as the only trusted pathway to making friends and maintaining friendships. The
sources positioned their sociality as a distinct pathway that they described as
lacking PNT social skills and personal qualities that didn’t enable friends to be
made and friendships to be maintained. The PNT meaning of sociality had been
internalised by the sources as the correct, obtainable, and only way of being
that resulted in their disadvantaged outcome.
For me, the task of overcoming social barriers was regarded by the sources as
being their responsibility alone, and could only be achieved by developing PNT
social skills and personal qualities. Sources didn’t expect the PNT to gain an
understanding of their sociality. I argue that this binary of autistic and PNT
sociality resulted from encountering the disabling social barriers of normalcy
and ableism. I also argue that overcoming these social barriers requires
broader constructions of sociality and friendship that include the meaning
described by persons with autism. An enabling narrative of sociality and
friendship for persons with autism is, therefore, required that deconstructs the
binary of autistic and PNT sociality for persons with autism and argues for a
range of sociality and friendship possibilities across being human. There is I
conclude one sociality that enables friends to be made and friendships to be
maintained by both persons with autism and the PNT.
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