Parkinson's impact on quality of life and cost of care on people with condition and their families in the UK: A review of literature*

The literature review aimed to gather evidence on the impact of Parkinson’s on the socio-economic life of individuals with the condition, their families and society based on prior research undertaken in the UK. The review also sought to enable a better understanding of the key medical and non-medical cost components directly associated with Parkinson's management and care, with an understanding of where public resources are currently directed. The literature has been synthesised using a comprehensive and transparent literature review process. 50 Papers meeting the inclusion criteria were read and data extracted using a standardised extraction form encompassing: author ⁄ date, the focus of the study, research design and sample size. The evidence was grouped into five themes: (a) Parkinson's incidence differentials by socio-economic status, (b) Parkinson's management and care, (c) Impact on quality of life (QoL) and wellbeing of people with Parkinson's (PwP), carers and family members, (d) Cost of healthcare use, and (e) Societal cost of Parkinson’s.