Experiences of the diagnosis and management of tuberculosis: a focused ethnography of Somali patients and healthcare professionals in the UK

KATE, Gerrish, NAISBY, Andrew and ISMAIL, Mubarak (2013). Experiences of the diagnosis and management of tuberculosis: a focused ethnography of Somali patients and healthcare professionals in the UK. Journal of advanced nursing, 69 (10), 2285-2294.

[img]
Preview
PDF
Experiences_of_the_diagnosis_and_management_of_tuberculosis-_a_focused_ethnography_oof_Somali_Patientsand_healthcare_professionals_in_UK.pdf - Accepted Version

Download (453kB) | Preview
Link to published version:: https://doi.org/10.1111/jan.12112
Related URLs:

    Abstract

    Aim. To explore experiences of the diagnosis and management of tuberculosis from the perspective of Somali patients and healthcare professionals involved in their care. Background. The Somali population has the third highest incidence of tuberculosis occurring in persons born outside the UK. Tuberculosis is a disease with sociocultural as well as physical consequences. Nurses should understand how the disease is experienced by people from different ethnic backgrounds to implement strategies for prevention and management of tuberculosis. Design. A focused ethnography. Method. Individual interviews with 14 Somali patients and 18 healthcare professionals with experience of providing care to Somalis were undertaken in 2008–2009. Interviews explored the patient experience from onset of symptoms to completion of treatment. Data were analysed using Framework approach. Findings. Despite presenting in primary care early,patients experienced diagnostic delays due to low clinical suspicion of tuberculosis among general practitioners. Although patients reported felt and enacted stigma,it did not adversely affect concordance with treatment. Patients were reticent about sharing their diagnosis among wider networks due to perceived stigma. Psychological support from families and specialist nurses was valued highly. Healthcare professionals perceived that stigmatization of tuberculosis was diminishing among Somalis leading to improved management of tuberculosis. Patients and healthcare professionals raised concerns about the longer term physical and psychosocial implications of tuberculosis once treatment was completed. Conclusion. Nurses have a role in promoting early presentation,timely diagnosis, and treatment adherence through supporting Somali patients and raising awareness of the disease among primary care practitioners.

    Item Type: Article
    Research Institute, Centre or Group - Does NOT include content added after October 2018: Centre for Health and Social Care Research
    Identification Number: https://doi.org/10.1111/jan.12112
    Page Range: 2285-2294
    Depositing User: Mubarak Ismail
    Date Deposited: 21 Jul 2014 11:40
    Last Modified: 08 Jul 2019 16:30
    URI: http://shura.shu.ac.uk/id/eprint/6798

    Actions (login required)

    View Item View Item

    Downloads

    Downloads per month over past year

    View more statistics