The qualitative DIGNISPACE study: The co-design of a life review, meaning-making and legacy leaving digital intervention for young people with life-limiting conditions

RODRIGUEZ, Alison M., KELLEHEAR, Allan, LANFRANCHI, Vitaveska, MCSHERRY, Wilfred, TATTERTON, Michael, WATTS MBE, Lucy, YAZIJI, Nahel and SMITH, Joanna (2023). The qualitative DIGNISPACE study: The co-design of a life review, meaning-making and legacy leaving digital intervention for young people with life-limiting conditions. Illness, crisis & loss.

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Abstract

Background: Young people with life-limiting conditions have unmet psycho-spiritual needs. Dignity Therapy is a psycho-therapeutic end-of-life intervention that addresses life review, meaning making and legacy leaving. Studies of Dignity Therapy including young people are limited. Aim: To co-design a digital Dignity Therapy-based intervention for young people with life-limiting conditions (DIGNISPACE). Design: A qualitative study including focus groups (n=5) with hospice-based healthcare professionals (n=23), semi-structured interviews with young people with life-limiting conditions (n=13) and family carers (n=12). Data were analyzed using framework analysis. Results: Three main themes were derived; intervention purpose, amendments to the Dignity Therapy question protocol and content for a digital application. Findings influenced the development of DIGNISPACE and a model of dignity in young people with life-limiting conditions. Conclusions: DIGNISPACE addresses the psycho-spiritual needs of young people with life-limiting conditions, including tenets of the model of dignity in young people with life-limiting conditions in its content and delivery.

Item Type:	Article
Uncontrolled Keywords:	1117 Public Health and Health Services; Nursing; 3202 Clinical sciences; 4202 Epidemiology; 4206 Public health
Identification Number:	https://doi.org/10.1177/10541373231202842
SWORD Depositor:	Symplectic Elements
Depositing User:	Symplectic Elements
Date Deposited:	10 Nov 2023 10:28
Last Modified:	10 Nov 2023 10:45
URI:	https://shura.shu.ac.uk/id/eprint/32652

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