Antenatal counselling for prospective parents whose fetus has a neurological anomaly: part 1, experiences and recommendations for service design

HART, AR, VOLLMER, B, HOWE, D, BOXALL, S, FOULDS, N, DE LACY, P, VASUDEVAN, C, GRIFFITHS, PD and PIERCY, Hilary (2021). Antenatal counselling for prospective parents whose fetus has a neurological anomaly: part 1, experiences and recommendations for service design. Developmental Medicine and Child Neurology.

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Official URL: https://onlinelibrary.wiley.com/doi/10.1111/dmcn.1...
Link to published version:: https://doi.org/10.1111/dmcn.15022
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    Abstract

    Prospective parents whose fetus is diagnosed with a neurological anomaly go through a complex range of emotions. They describe their discussions of antenatal counselling from health care professionals as focusing too much on the nature of the anomaly involving unintelligible medical terminology, when what they really want is a picture of the best- and worst-case scenarios. Whilst information on the level of risk for their fetus is important, it is not the parents’ primary concern. When statistics for risk are given, they may not be as well understood as the health care professionals think. This review discusses the published evidence on antenatal counselling and recommendations for explaining risk to parents of fetuses with neurological anomalies. From this data we make recommendations for the organization of antenatal counselling services.

    Item Type: Article
    Uncontrolled Keywords: 11 Medical and Health Sciences; Pediatrics
    Identification Number: https://doi.org/10.1111/dmcn.15022
    SWORD Depositor: Symplectic Elements
    Depositing User: Symplectic Elements
    Date Deposited: 21 Sep 2021 09:49
    Last Modified: 21 Sep 2021 10:00
    URI: http://shura.shu.ac.uk/id/eprint/29080

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