Designing a web-application to support home-based care of childhood CKD stages 3-5: Qualitative study of family and professional preferences

SWALLOW, Veronica, HALL, A.G., CAROLAN, I., SANTACROCE, S., WEBB, N.J., SMITH, T. and HANIF, N. (2014). Designing a web-application to support home-based care of childhood CKD stages 3-5: Qualitative study of family and professional preferences. BMC Nephrology, 15 (1), p. 34.

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Background: There is a lack of online, evidence-based information and resources to support home-based care of childhood CKD stages 3-5. Methods. Qualitative interviews were undertaken with parents, patients and professionals to explore their views on content of the proposed online parent information and support (OPIS) web-application. Data were analysed using Framework Analysis, guided by the concept of Self-efficacy. Results: 32 parents, 26 patients and 12 professionals were interviewed. All groups wanted an application that explains, demonstrates, and enables parental clinical care-giving, with condition-specific, continously available, reliable, accessible material and a closed communication system to enable contact between families living with CKD. Professionals advocated a regularly updated application to empower parents to make informed health-care decisions. To address these requirements, key web-application components were defined as: (i) Clinical care-giving support (information on treatment regimens, video-learning tools, condition-specific cartoons/puzzles, and a question and answer area) and (ii) Psychosocial support for care-giving (social-networking, case studies, managing stress, and enhancing families' health-care experiences). Conclusions: Developing a web-application that meets parents' information and support needs will maximise its utility, thereby augmenting parents' self-efficacy for CKD caregiving, and optimising outcomes. Self-efficacy theory provides a schema for how parents' self-efficacy beliefs about management of their child's CKD could potentially be promoted by OPIS. © 2014 Swallow et al.; licensee BioMed Central Ltd.

Item Type: Article
Uncontrolled Keywords: Interactive health communication applications (IHCA); Self-efficacy; Online parent information and support (OPIS) application; Chronic kidney disease (CKD); Children; Clinical support; Parental care-giving; Long-term; Attitude of Health Personnel; Caregivers; Child; Child, Preschool; Consumer Behavior; Female; Home Care Services; Humans; Infant; Infant, Newborn; Internet; Male; Needs Assessment; Renal Insufficiency, Chronic; Software; Software Design; Therapy, Computer-Assisted; United Kingdom; Humans; Therapy, Computer-Assisted; Attitude of Health Personnel; Needs Assessment; Internet; Software; Software Design; Child; Child, Preschool; Infant; Infant, Newborn; Caregivers; Home Care Services; Female; Male; Renal Insufficiency, Chronic; Consumer Behavior; United Kingdom; Urology & Nephrology; 1103 Clinical Sciences
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Page Range: p. 34
SWORD Depositor: Symplectic Elements
Depositing User: Symplectic Elements
Date Deposited: 18 May 2020 16:09
Last Modified: 18 Mar 2021 01:38

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