Peer-based Social Support for Young-People with Juvenile Arthritis: Views of Young People, Parents/Carers and Healthcare Professionals within the UK

WAITE-JONES, JM and SWALLOW, V (2018). Peer-based Social Support for Young-People with Juvenile Arthritis: Views of Young People, Parents/Carers and Healthcare Professionals within the UK. Journal of Pediatric Nursing, 43, e85-e91.

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Official URL: https://www.sciencedirect.com/science/article/abs/...
Link to published version:: https://doi.org/10.1016/j.pedn.2018.07.012
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    Abstract

    Purpose: A deeper understanding was sought of what peer-based social support means to young people with juvenile arthritis within the UK and ways in which it could be best provided. Design and Methods: A secondary analysis of underused, descriptively rich data relating to peer-based support contributed by young people with juvenile arthritis, their parents/carers and healthcare professionals from a qualitative study (seeking their views on a potential self-management mobile-app) was carried out using methods suggested by Interpretive Phenomenological Analysis. Results: Peer-based support can provide a new kind of ‘normality’ for young people with juvenile arthritis, including greater understanding, relief, reassurance, shared learning and increased self-efficacy. However, the risk of stigma through this shared identity suggests a need to offer various forms of access including using new electronic media. Conclusion and Implications: The evidence suggests that although desired, the potential social cost of identifying with peers living with juvenile arthritis is influenced by the way such support is provided, which in turn impacts on how readily it will be accessed. This suggests the need to provide various means of accessing peer-based contact, including electronic media, to ensure that young people with juvenile arthritis benefit. Therefore, when promoting and supporting peer-based social support, as far as possible, professionals need to individualise ways in which such support can be accessed because there is no ‘one size fits all’ approach.

    Item Type: Article
    Uncontrolled Keywords: Peer-based social support; Young people; Juvenile arthritis; Support groups; Online social support; Juvenile arthritis; Online social support; Peer- based social support; Support groups; Young people; Adaptation, Psychological; Adolescent; Arthritis, Juvenile; Caregivers; Child; Disease Management; Female; Health Personnel; Humans; Interviews as Topic; Male; Peer Group; Qualitative Research; Quality of Life; Social Support; United Kingdom; Humans; Adaptation, Psychological; Peer Group; Qualitative Research; Quality of Life; Social Support; Adolescent; Child; Caregivers; Health Personnel; Disease Management; Female; Male; Interviews as Topic; Arthritis, Juvenile; United Kingdom; Nursing; 1110 Nursing; 1114 Paediatrics and Reproductive Medicine
    Identification Number: https://doi.org/10.1016/j.pedn.2018.07.012
    Page Range: e85-e91
    SWORD Depositor: Symplectic Elements
    Depositing User: Symplectic Elements
    Date Deposited: 17 Mar 2020 17:20
    Last Modified: 17 Mar 2020 17:20
    URI: http://shura.shu.ac.uk/id/eprint/25910

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