An Exploration of Comfort and Discomfort Amongst Children and Young People with Intellectual Disabilities Who Depend on Postural Management Equipment

LYONS, E.A., JONES, D.E., SWALLOW, Veronica M. and CHANDLER, C. (2016). An Exploration of Comfort and Discomfort Amongst Children and Young People with Intellectual Disabilities Who Depend on Postural Management Equipment. Journal of Applied Research in Intellectual Disabilities, 30 (4), 727-742.

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Official URL: https://onlinelibrary.wiley.com/doi/full/10.1111/j...
Link to published version:: https://doi.org/10.1111/jar.12267
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    Abstract

    © 2016 John Wiley & Sons Ltd Background: The natural response to the intrusive bodily sensation is positional change. This study explored how children and young people (CYP) with intellectual disabilities had their comfort needs met when using adaptive positioning equipment. Methods: Thirteen qualitative case studies were undertaken. A parent, a teacher/key worker and a therapist for each CYP were interviewed, and daily routines were observed, with selective video recording. Single case and cross case analyses were undertaken. Results: Attentive caregivers read the behavioural expressions of the CYP and responded reassuringly, safeguarding them from discomforting experiences. Threats to comfort include the restrictive nature of some equipment accessories, positioning errors and procedural stretching. Conclusions: The same item of equipment can be both comfortable and uncomfortable. Given the social and interactional world in which the CYP live and learn, it is others who must accept responsibility for ensuring their optimal level of comfort.

    Item Type: Article
    Uncontrolled Keywords: adaptive seating; postural management equipment; comfort and discomfort; intellectual disabilities; adaptive seating; comfort and discomfort; intellectual disabilities; postural management equipment; Adolescent; Caregivers; Child; Child, Preschool; Female; Humans; Intellectual Disability; Male; Parents; Patient Comfort; Posture; Qualitative Research; Self-Help Devices; Young Adult; Humans; Self-Help Devices; Parents; Posture; Qualitative Research; Adolescent; Child; Child, Preschool; Caregivers; Female; Male; Young Adult; Intellectual Disability; Patient Comfort; 1701 Psychology; 1702 Cognitive Sciences; 1607 Social Work; Rehabilitation
    Identification Number: https://doi.org/10.1111/jar.12267
    Page Range: 727-742
    SWORD Depositor: Symplectic Elements
    Depositing User: Symplectic Elements
    Date Deposited: 28 Aug 2020 14:57
    Last Modified: 28 Aug 2020 15:00
    URI: http://shura.shu.ac.uk/id/eprint/25907

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