Experiences of dysphagia after stroke: an interview study of stroke survivors and their informal caregivers

ELTRINGHAM, Sabrina, POWNALL, Sue, BRAY, Ben, SMITH, Craig J., PIERCY, Laura and SAGE, Karen (2019). Experiences of dysphagia after stroke: an interview study of stroke survivors and their informal caregivers. Geriatrics, 4 (4), e67.

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Official URL: https://www.mdpi.com/2308-3417/4/4/67/htm
Open Access URL: https://www.mdpi.com/2308-3417/4/4/67/htm (Published)
Link to published version:: https://doi.org/10.3390/geriatrics4040067
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    Abstract

    (1) Background: Swallowing difficulties (dysphagia) after stroke are not uncommon and is a consistent risk factor for stroke-associated pneumonia. This interview study explores the perspectives of stroke survivors, who had their swallowing assessed in the first few days of admission to hospital, and their informal caregivers. (2) Methods: A participatory approach was used involving people affected by stroke in the interpretation and analysis of the interview data. Data was thematically analysed and six themes were identified. (3) Results: These themes included how past-future experiences may influence a person’s emotional response to events; understanding what is happening and adjustment; the impact of dysphagia; attitudes to care; communication to patients and procedural issues. (4) Conclusion: The findings highlight the importance of effective public health messages to improve people’s responsiveness to the signs of stroke, standardisation of assessment and management procedures, effective communication to patients about the consequences of dysphagia, and the impact of dysphagia on the person who had the stroke and their informal caregiver.

    Item Type: Article
    Additional Information: ** From MDPI via Jisc Publications Router ** Licence for this article: https://creativecommons.org/licenses/by/4.0/ **Journal IDs: eissn 2308-3417 **History: published 07-12-2019; accepted 03-12-2019
    Uncontrolled Keywords: acute stroke, dysphagia, patient and public involvement, thematic analysis
    Identification Number: https://doi.org/10.3390/geriatrics4040067
    Page Range: e67
    SWORD Depositor: Justine Gavin
    Depositing User: Justine Gavin
    Date Deposited: 09 Dec 2019 10:21
    Last Modified: 09 Dec 2019 10:30
    URI: http://shura.shu.ac.uk/id/eprint/25522

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