Patients as researchers - innovative experiences in UK National Health Service research

CALDON, L. J. M., MARSHALL-CORK, H., SPEED, G., REED, M. W. R. and COLLINS, K. A. (2010). Patients as researchers - innovative experiences in UK National Health Service research. International journal of consumer studies, 34 (5), 547-550.

SP10_FINAL_Submitted_Revised_Maunuscript_Patients_as_researchersIntJConsStudies_10May2010.pdf - Submitted Version

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Link to published version:: 10.1111/j.1470-6431.2010.00907.x


Consumer involvement is an established priority in UK health and social care service development and research. To date, little has been published describing the process of consumer involvement and assessing ‘consumers’ contributions to research. This paper provides a practical account of the effective incorporation of consumers into a research team, and outlines the extent to which they can enhance the research cycle; from project development and conduct, through data analysis and interpretation, to dissemination. Salient points are illustrated using the example of their collaboration in a research project. Of particular note were consumers’ contributions to the development of an ethically enhanced, more robust project design, and enriched data interpretation, which may not have resulted had consumers not been an integral part of the research team.

Item Type: Article
Uncontrolled Keywords: patient and public involvement, consumer involvement, research
Research Institute, Centre or Group: Centre for Health and Social Care Research
Identification Number: 10.1111/j.1470-6431.2010.00907.x
Depositing User: Karen Collins
Date Deposited: 06 Sep 2010 16:14
Last Modified: 19 Aug 2015 14:28

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