Patients' perspective of the effectiveness and acceptability of pharmacological and non-pharmacological treatments of fibromyalgia.

TAYLOR, Sophie, STEER, Michael, ASHE, Simon, FURNESS, Penny, HAYWOOD-SMALL, Sarah and LAWSON, Kim (2018). Patients' perspective of the effectiveness and acceptability of pharmacological and non-pharmacological treatments of fibromyalgia. Scandinavian Journal of Pain.

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Official URL: https://www.degruyter.com/view/j/sjpain.ahead-of-p...
Link to published version:: https://doi.org/10.1515/sjpain-2018-0116
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    Abstract

    Background and aims Fibromyalgia is a complex condition characterised by widespread pain, sleep disturbance, fatigue and cognitive impairment, with a global mean prevalence estimated at 2.7%. There are inconsistencies in guidelines on the treatment of fibromyalgia leading to dissatisfaction from patients and healthcare professionals. This study investigated patient-reported outcomes of pharmacological and non-pharmacological treatment usage and effectiveness with an assessment of acceptability. Methods Nine hundred and forty-one participants completed a self-administered anonymous questionnaire giving quantitative data of demographics, treatment usage and treatment outcomes. Participant-reported effectiveness and side effects were compared in the following treatment classes: analgesics, antidepressants, gabapentinoids, gastrointestinal treatments, activity interventions, dietary-based treatments, and psychological, physical and alternative therapies. Participants also reported whether they knew about or had tried different treatments. Results The results from the online survey indicated that the range of mean effectiveness ratings were similar for pharmacological and non-pharmacological treatments, whereas non-pharmacological treatments had lower side effects ratings and higher acceptability relative to pharmacological treatments. Participants were not aware of some treatment options. Conclusions The results show lower side effects ratings and higher acceptability for non-pharmacological treatments compared to pharmacological treatments despite similar effectiveness ratings. Implications This article presents results from a large online survey on fibromyalgia patient perspectives of pharmacological and non-pharmacological treatments. Results will inform healthcare professionals and patients about optimal treatments based on ratings of effectiveness, side effects and acceptability that are tailored to patient symptom profiles. Some participants were unaware of treatment options highlighting the importance of patient education allowing collaboration between patients and healthcare professionals to find optimal treatments.

    Item Type: Article
    Uncontrolled Keywords: fibromyalgia; non-pharmacological treatments; online survey; patients’ perspective; pharmacological treatments; 1103 Clinical Sciences
    Research Institute, Centre or Group - Does NOT include content added after October 2018: Biomolecular Sciences Research Centre
    Departments - Does NOT include content added after October 2018: Faculty of Social Sciences and Humanities > Department of Psychology, Sociology and Politics
    Identification Number: https://doi.org/10.1515/sjpain-2018-0116
    SWORD Depositor: Symplectic Elements
    Depositing User: Symplectic Elements
    Date Deposited: 30 Oct 2018 14:23
    Last Modified: 13 Oct 2019 01:18
    URI: http://shura.shu.ac.uk/id/eprint/23148

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