Decision-making in older women with breast cancer: a mixed methods study

BURTON, Rita Maria (2017). Decision-making in older women with breast cancer: a mixed methods study. Doctoral, Sheffield Hallam University.

[img]
Preview
PDF
RBurton_2017_PhD_Decision-makingInOlder.pdf - Accepted Version
Creative Commons Attribution Non-commercial No Derivatives.

Download (19MB) | Preview
Link to published version:: https://doi.org/10.7190/shu-thesis-00045
Related URLs:

    Abstract

    Background and aims In the United Kingdom one third of all breast cancers are diagnosed in women aged 70 or over. Older women with breast cancer are less likely to be offered or receive standard treatment. Aim The overarching aim of this study was to establish the information needs and decision-making preferences of older women diagnosed with primary, operable, oestrogen receptor positive breast cancer and faced with a choice of surgery or primary endocrine therapy (PET). Research design and methods This exploratory, sequential mixed methods study comprised a critical review of the literature, qualitative interviews and a quantitative questionnaire. The findings were interpreted and integrated in line with the mixed method ethos. Key Findings The findings are underpinned by varied and complex internal and external influences. It is accepted that with increasing age cognitive functioning is compromised and poor health literacy is common. Although, the views of HCPs influenced treatment decisions, contrary to previously reported studies older women in this study wanted active involvement in the decision-making process and demonstrated confidence when making treatment choices. In terms of the content and format of information, unsurprisingly women preferred tailored information delivered face to face by the specialist HCP. In terms of written information women wanted brevity and simplicity. Visual displays of numeric data were unpopular and were found to be confusing for most women. Conclusions and recommendations Information and decision support needs varied among this group of women. Understanding how older women define ' involvement in treatment decision-making' would enhance the development of appropriate decision support. Further work is required in the development of data collection tools, particularly questionnaires, appropriate for an older, frail population.

    Item Type: Thesis (Doctoral)
    Additional Information: Director of Studies: Professor Karen Collins
    Uncontrolled Keywords: Article based PhD
    Research Institute, Centre or Group - Does NOT include content added after October 2018: Sheffield Hallam Doctoral Theses
    Identification Number: https://doi.org/10.7190/shu-thesis-00045
    Depositing User: Jill Hazard
    Date Deposited: 05 Jan 2018 14:59
    Last Modified: 07 Apr 2020 11:41
    URI: http://shura.shu.ac.uk/id/eprint/18143

    Actions (login required)

    View Item View Item

    Downloads

    Downloads per month over past year

    View more statistics