Evaluating a novel cervical orthosis, the Sheffield Support Snood, in patients with amyotrophic lateral sclerosis/motor neuron disease with neck weakness

BAXTER, S, REED, H, CLARKE, Z, JUDGE, S, HERON, N, MCCARTHY, A, LANGLEY, Joe, STANTON, Andrew, WELLS, O, SQUIRE, G, QUINN, A, SHAW, P and MCDERMOTT, C (2016). Evaluating a novel cervical orthosis, the Sheffield Support Snood, in patients with amyotrophic lateral sclerosis/motor neuron disease with neck weakness. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. (In Press)

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Link to published version:: 10.3109/21678421.2016.1148170

Abstract

Current practice and guidelines recommend the use of neck orthoses for people with amyotrophic lateral sclerosis (ALS) to compensate for neck weakness and to provide surrogate neck control. However, available options are frequently described by patients as restrictive and unsuitable and there was a need for a new device that addressed the needs of people with ALS. This project utilized a co-design process to develop a new neck orthosis that was more flexible yet supportive. Following development of a prototype device, a mixed methods cohort study was undertaken with patients and carers, in order to evaluate the new orthosis. Twenty-six patients were recruited to the study, with 20 of these completing all phases of data collection. Participants described the impact of neck weakness on their life and limitations of existing supports. Evaluation of the new orthosis identified key beneficial features: notably, increased support while providing a greater range of movement, flexibility of use, and improved appearance and comfort. In conclusion, the results of this evaluation highlight the value of this alternative option for people with ALS, and potentially other patient groups who require a neck orthosis.

Item Type: Article
Research Institute, Centre or Group: Cultural Communication and Computing Research Institute > Art and Design Research Centre
Identification Number: 10.3109/21678421.2016.1148170
Depositing User: Joe Langley
Date Deposited: 03 Mar 2016 11:14
Last Modified: 19 Oct 2016 23:19
URI: http://shura.shu.ac.uk/id/eprint/11636

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