Journeying through Dementia, a community-based self-management intervention for people aged 65 years and over : a feasibility study to inform a future trial

SPRANGE, Kirsty["lib/metafield:join_name" not defined]MOUNTAIN, Gail["lib/metafield:join_name" not defined]SHORTLAND, Katy["lib/metafield:join_name" not defined]CRAIG, Claire["lib/metafield:join_name" not defined]BLACKBURN, Daniel["lib/metafield:join_name" not defined]BOWIE, Peter["lib/metafield:join_name" not defined]HARKNESS, Kirsty["lib/metafield:join_name" not defined]SPENCER, Maggie (2015). Journeying through Dementia, a community-based self-management intervention for people aged 65 years and over : a feasibility study to inform a future trial. Pilot and Feasibility Studies, 1 (42).

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["doi_link" not defined]: 10.1186/s40814-015-0039-6

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Background: A study to determine the feasibility of conducting a future population-based trial into a self-management intervention for community-living adults with early stage dementia included evaluation of intervention content and modes of delivery, staffing requirements, recruitment methods and the utility and usability of patient reported outcomes. Methods: Participants identified through memory clinics in one city took part in an intervention called ‘Journeying through Dementia’. The 12-week programme incorporating four individual sessions with one of the facilitators encourages participants to engage in discussion and activities related to health and well-being positioning them as the expert enabling long-term behavioural change. Participants (n = 10) and their nominated carers (n = 7) were all asked to complete selected outcomes at baseline, 8 weeks (participants only) and post intervention and invited to comment on their usability. All participants and carers were qualitatively interviewed before intervention delivery about their expectations and participants; nominated carers and facilitators were all interviewed after cessation about their experiences. Results: The manualised intervention and modes of delivery proved acceptable to participants and carers. Reported benefits included increased confidence and self-efficacy, engagement in new or lapsed activities and re-engagement in fun and friendships. People with dementia and carers were able to self-complete all outcome measures, but time required to complete the measures is a key factor. Strategies for recruitment need to include direct contact within 24–48 h post invitation to the study. Analysis of data on the primary outcome did not reveal any trends. Facilitators found the training and support to be appropriate and helpful. Conclusions: The tailored intervention reportedly met the needs of all participants. The study confirmed the need for careful identification and application of patient-reported outcome measures. Outcomes to measure some dimensions of reported benefit are not available.

["eprint_fieldname_type" not defined]: ["eprint_typename_article" not defined]
["eprint_fieldname_divisions" not defined]: Cultural Communication and Computing Research Institute["lib/metafield:join_subject_parts" not defined]Art and Design Research Centre
["eprint_fieldname_id_number" not defined]: 10.1186/s40814-015-0039-6
["eprint_fieldname_userid" not defined]: Claire Craig
["eprint_fieldname_datestamp" not defined]: 08 ["lib/utils:month_short_01" not defined] 2016 10:17
["eprint_fieldname_lastmod" not defined]: 29 ["lib/utils:month_short_01" not defined] 2018 02:39

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