Journeying through Dementia, a community-based self-management intervention for people aged 65 years and over : a feasibility study to inform a future trial

SPRANGE, Kirsty, MOUNTAIN, Gail, SHORTLAND, Katy, CRAIG, Claire, BLACKBURN, Daniel, BOWIE, Peter, HARKNESS, Kirsty and SPENCER, Maggie (2015). Journeying through Dementia, a community-based self-management intervention for people aged 65 years and over : a feasibility study to inform a future trial. Pilot and Feasibility Studies, 1 (42).

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Official URL: http://link.springer.com/article/10.1186%2Fs40814-...
Link to published version:: 10.1186/s40814-015-0039-6

Abstract

Background: A study to determine the feasibility of conducting a future population-based trial into a self-management intervention for community-living adults with early stage dementia included evaluation of intervention content and modes of delivery, staffing requirements, recruitment methods and the utility and usability of patient reported outcomes. Methods: Participants identified through memory clinics in one city took part in an intervention called ‘Journeying through Dementia’. The 12-week programme incorporating four individual sessions with one of the facilitators encourages participants to engage in discussion and activities related to health and well-being positioning them as the expert enabling long-term behavioural change. Participants (n = 10) and their nominated carers (n = 7) were all asked to complete selected outcomes at baseline, 8 weeks (participants only) and post intervention and invited to comment on their usability. All participants and carers were qualitatively interviewed before intervention delivery about their expectations and participants; nominated carers and facilitators were all interviewed after cessation about their experiences. Results: The manualised intervention and modes of delivery proved acceptable to participants and carers. Reported benefits included increased confidence and self-efficacy, engagement in new or lapsed activities and re-engagement in fun and friendships. People with dementia and carers were able to self-complete all outcome measures, but time required to complete the measures is a key factor. Strategies for recruitment need to include direct contact within 24–48 h post invitation to the study. Analysis of data on the primary outcome did not reveal any trends. Facilitators found the training and support to be appropriate and helpful. Conclusions: The tailored intervention reportedly met the needs of all participants. The study confirmed the need for careful identification and application of patient-reported outcome measures. Outcomes to measure some dimensions of reported benefit are not available.

Item Type: Article
Research Institute, Centre or Group: Cultural Communication and Computing Research Institute > Art and Design Research Centre
Identification Number: 10.1186/s40814-015-0039-6
Depositing User: Claire Craig
Date Deposited: 08 Jan 2016 10:17
Last Modified: 19 Oct 2016 23:24
URI: http://shura.shu.ac.uk/id/eprint/11205

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